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Welcome to Jake's Ride |
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Event Details
When: Sunday, October 5, 2008
Where: The Start & Finish will be at Glennwood School in Millburn, NJ
Who: You!!! We are looking to have 750 riders participating in the 1st Annual Jake's Ride so register right now!
Time: The event will take place in the morning with specific details coming soon...
Distances:
1 Mile
5 Mile
10 Mile
20 Mile
Do you know what Dystonia is?
a) A small country in Eastern Europe
b) A rock formation
c) A medieval warship
d) A debilitating neuromuscular movement disorder affecting over 500,000 people, one-third of them children, including one very special boy in Millburn/Short Hills community
Answer: D
Jake's Story
Jake, a Millburn Middle School student, was diagnosed with early onset childhood dystonia in April 2007. Dystonia, which causes uncontrollable, painful spasms, is often misdiagnosed, although it affects more people than muscular dystrophy, Huntington’s disease, and ALS (Lou Gehrig’s disease) combined. Now at 12 years old, everyday activities, such as riding a bike, playing sports, walking his dog, or simply attending school, are memories in Jake’s past. There is no known cure for dystonia and treatment rarely brings remission. Jake is currently undergoing a complex deep brain stimulation therapy in an attempt to improve his quality of life.
Through it all, Jake has inspired all those around him with his bravery, humor, intelligence, and, most importantly, compassion for others. In this spirit of community, we invite you to join us in helping one of our own raise awareness and aid in finding a cure for dystonia.
For more information please call (212) 682-9900
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